Ashley Levinson has worked diligently with the PCOS Community over the past 20 years, starting in 1999 as PCOS Chat moderator on About.Com Infertility Boards. Ashley continues to advocate for better treatment and awareness for PCOS with the creation of an online PCOS Awareness Petition with close to 32,000 signatures and has made appearances to raise PCOS awareness including; Discovery Health Channel – Mystery Diagnosis, The 10! on WCAU Philadelphia, Fox News, Gloucester County Times, Woman’s World Magazine, Pocono Record and PCOS Today Magazine, as well others. She was also named a top ten finalist for Glamour Magazine’s Woman of the Year in 2008 for her PCOS Advocacy and named The 2016 Ricardo Azziz PCOS Challenge Patient Advocacy Leader and WEGO Health 2018 Best in Show: Twitter Patient Advocate Award.
In a few crucial ways, Polycystic Ovary Syndrome (PCOS) is a misnamed syndrome. The name implies that it’s all about the ovaries. In fact, PCOS affects many different systems and organs of the body, including the heart. A true #PCOSWarrior, @PCOSGurl, Ashley Levinson, shares how and why to turn it red for #PCOS and heart disease below:
Ashley Levinson, CMA, CST, CSFA
Women with Polycystic Ovary Syndrome are at risk for many potentially life-threatening conditions as a result of untreated PCOS. Cardiovascular disease is one of them!
Polycystic Ovary Syndrome (PCOS) is the most common hormonal (endocrine) syndrome in women. It is a metabolic syndrome that affects several body systems and can cause significant long-term health consequences including heart disease.
Research has linked PCOS with multiple risk factors for coronary heart disease including; high cholesterol, irregular menstrual cycles, obesity, and hypertension.
Researchers have also found that PCOS, with its symptomatic disorders of hypertension, excessive fat tissue in and around the abdominal area, blood fat disorders (high triglycerides and low HDL), high blood pressure, hyperandrogenism (elevated levels of male hormones), and insulin resistance are all contributing factors to cardiovascular disease.
Insulin, in particular, tends to be a consistent risk factor with PCOS, as approximately 70% of patients develop insulin resistance.
As insulin comes in contact with the interior wall of the arteries, it damages the tissue, causing the initial injury that produces plaque. Having insulin resistance and PCOS can directly cause changes in blood lipids and overall cardiovascular health that contribute to the formation of heart disease.
PCOS patients are at higher risk to develop high blood pressure, lipid disorders, diabetes, and coronary artery disease.
As many as 40% of PCOS patients as young as age 30-45 may have coronary calcification (a warning of heart attack risk).
Researchers have discovered that the carotid artery, which is located in the neck, is thicker in women with PCOS equaling a higher heart disease risk.
Patients with PCOS can develop Coronary Artery Disease as early as in their twenties.
High Insulin Levels from PCOS Can Lead to Heart and Blood Vessel Problems
...which, you guessed it, contribute to the risk of heart issues. Specifically, higher insulin can present the following issues in your cardiovascular system:
hardening of the arteries (atherosclerosis)
coronary artery disease and heart attack
high blood pressure
It is important, at minimum, to have a yearly appointment with a PCOS-friendly doctor to have bloodwork checked. Even if you are under 40, PCOS can present heart disease risks. Women as young their 20s with PCOS can start developing the plaque deposits leading to cardiovascular disease. Regular checkups and sound treatment plans are therefore vital to long term health with the syndrome.
PCOS is not a life sentence, even though it is a syndrome you will have throughout your lifetime. Knowledge is power and together we have the choice (and chance!) to change our lives through education, advocacy, and support.
My hope is that every voice speaks up and out about their experience with PCOS. I hope it effectuates change and hopefully, a new era of better understanding and treatment for all living with PCOS.
Lastly and most important… I hope you know that you are not alone. Yes, you are your best advocate, but the rest of the voices are here to speak up for you, too. There are many living with this syndrome and there are many doctors who are well-versed in PCOS symptoms and treatment, all of which are in your corner.
To learn more and help prevent PCOS related cardiovascular disease, please join us this February during#HeartHealthMonth as we turn from our traditional teal to red for the 5th Annual #Heart4PCOS Campaign.
We will be posting photos, articles, and patient interview information. We will also be hosting live chats and videos throughout February.
HOW TO PARTICIPATE IN #Heart4PCOS
Post your photo on social media using the following steps:
1. Wear red & upload photo
2. Use #Heart4PCOS hashtag
3. Tag your family, friends, and doctors!
4. Post photos between 2/1 - 2/29
You can also add a frame to your Facebook profile pic:
1. Click to edit your profile photo
2. Click add frame
3. Search frames #Heart4PCOS & #TurnTealtoRed
4. Save changes
On February 7th, raise awareness for women with PCOS, who are the largest at-risk group for cardiovascular disease in women! Use the posting tactics above, and also use the hashtags #GoRed, #GoRedWomen, and #Heart4PCOS.
Let's keep PCOS patients' hearts beating by ending heart disease risks for women with Polycystic Ovary Syndrome.